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      8
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    Palliative Versorgung onkologischer Erkrankungen
    (Kohlhammer Verlag, 2024)
    Appelmann, Iris
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    Wasner, Maria
    book part
      1
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      8
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    Vorsorgeplanung am Lebensende aus palliativmedizinischer Sicht
    Was passiert, wenn man selbst nicht mehr in der Lage ist, über medizinische Behandlungen zu entscheiden? Das Konzept des Advance Care Planning (ACP) ist ein vorausschauender und stetig reflexiver Gesprächsprozess in Bezug auf Präferenzen für zukünftige Behandlungsmaßnahmen. In Deutschland wurde das Konzept „Behandlung im Voraus planen“ (BVP) eingeführt. Der Beitrag beschäftigt sich mit den einzelnen Themenbereichen und der erfolgreichen Implementierung.
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      104
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      70
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    Development of a patient assessment to meet the needs of patients suffering from advanced non-oncological diseases – the KOPAL study
    Background To develop an aide memoire for patients diagnosed with advanced non-oncological chronic diseases, the KOPAL conversation guide, to foster interprofessional counselling between GPs and specialist palliative home care teams. Methods As part of the multi-centre, two-arm, cluster randomised controlled KOPAL study, the draft of the conversation guide was discussed and consented in three focus groups with 4 patients, 7 health care providers, and 5 stakeholders. Results The final version of the KOPAL conversation guide contains eight key topics: living with the illness, physical situation, emotional situation, personal situation, social situation, information and communication, control and autonomy, emergency management. Each topic refers to different general points, which are listed on top of the respective thematic section. The conversation should start by addressing the patient’s today’s well-being and end by asking for the patient’s main topic based on the discussed issues. Conclusions The KOPAL conversation guide is a broad evaluation and communication tool that covers potential palliative care (PC) needs of non-oncological patients and provides a basis for interprofessional case planning and counselling. Applying the KOPAL conversation guide may help to bridge the communicative gap between general and specialist PC professionals and between professionals and patients.
    journal article
      88
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      68
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    Beratung in der letzten Lebensphase
    (Verlag Kirchheim + Co. GmbH, 2022)
    journal article
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      70
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    Suizidassistenz: Wieso sind Pflegefachkräfte so still?
    (Friedrich Verlag, 2021)
    Menschen haben ein Recht auf selbstbestimmtes Sterben, so hat das Bundesverfassungsgericht geurteilt. Pflegefachkräfte in Deutschland sollten gemeinsam über Machbares und Grenzen diskutieren – und ihre eigene Position finden.
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      89
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    Supervision, Moral Distress and Moral Injury Within Palliative Care—A Qualitative Study
    (MDPI AG, 2025-07) ; ;
    Owusu-boakye Sonja
    ;
    The number of people requiring palliative care is increasing. This can result in moral and ethical conflicts that may lead to psychological distress and moral injury. (MI). Solutions are needed to counteract career abandonment—supervision (SV) could be one solution. This study examines the extent to which palliative care nurses link MI to their everyday experiences and whether SV can contribute to the identification and prevention of moral distress and MI. In addition, factors that influence the implementation of, participation in, and perception of SV are analyzed. A qualitative study design was chosen for the investigation, consisting of guided interviews, narrative-generating questions with seven participants working in palliative care, and participant observation with audio recording during two supervisions of two palliative care teams with 16 participants in total. The data was analyzed using qualitative content analysis according to Mayring. The results show differences in workload between acute and palliative care wards. Time pressure and hierarchical structures promote distress and MI and are particularly evident on acute wards. The interviewees described specific experiences of MI. In addition, factors were identified that influence participation in SV. The analysis of SV showed that workload is a key cause of moral distress and can have an impact on health. SV can be used for sensitization and exchange. Implementation and acceptance of SV depend on individual and structural factors. In palliative care, signs of moral distress are present and are specifically addressed in SV, which means that SV can be a tool for dealing with stressful situations.
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